USEFUL LINKS

CF Condition

Cystic Fibrosis Trust

Cystic Fibrosis Trust

We are the UK's only national charity dealing with all aspects of cystic fibrosis. We fund research to improve cystic fibrosis care and treatment, and aim to ensure appropriate clinical care and support for people with cystic fibrosis..

NHS Choices - CF

NHS Choices - CF

NHS article introducing Cystic Fibrosis and providing a clear explanation of the condition, symptoms, management and with links to further information..

Changing Futures

Changing Futures

The website creatively explores cystic fibrosis and gene therapy, and was created by young people with cystic fibrosis who worked with a project team. The site includes a range of different resources.

Medicines for Children

Medicines for Children

This website contains information about some medicines with leaflets prepared by the Royal College of Paediatrics and child health (RCPCH) and Neonatal and Paediatric Pharmacists Group (NPPG). These leaflets are designed with children in mind to provide answers to common questions that parents and young people may have about their medicines. There are also videos available on how to administer medicines including liquids, eye drops and nasal sprays.

CF charities, trusts and support groups

Cystic Fibrosis Foundation

Cystic Fibrosis Foundation

Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Providing information about the disease, research and support..

Daily Strength CF Support Group

Daily Strength CF Support Group

A small community forum with information, advice, Q&A on Cystic Fibrosis.

CF Voice

CF Voice

An online community for people, of all ages, who are living with cystic fibrosis.

Home-Start

Home-Start

Home-Start is a charity that provides support to families with young children in local communities across the UK.

CF Holiday Fund

CF Holiday Fund

Provide financial assistance for UK children and young people with cystic fibrosis up to the age of 25.

Starlight Children's Foundation

Starlight Children's Foundation

Starlight helps terminally ill children aged 4 to 18, including those with cystic fibrosis, by granting them a magical wish and by creating entertainment in hospitals and hospices..

Make a Wish

Make a Wish

Make a wish is an organisation that grants magical wishes to children and young people fighting life-threatening conditions.

Family Fund

Family Fund

The UK’s largest provider of grants to low-income families raising disabled and seriously ill children and young people. We help ease the additional pressures families face. We can help with essential items such as washing machines, fridges and clothing but can also consider grants for sensory toys, computers and much needed family breaks together..

CF Dream Holidays

CF Dream Holidays

Provides free holidays for children who are living with cystic fibrosis. so that they can enjoy a carefree holiday with their families. Their mission is to help the families enjoy precious time together, away from the day to day pressures of everyday life.

React Charity

React Charity

React - Rapid Effective Assistance for Children with Potentially Terminal illness is a dynamic charity working to improve the quality of life for children with life-limiting illnesses living in financially disadvantaged households throughout the UK.

Butterfly wishes network

Butterfly wishes network

The Butterfly Wishes Network is a not-for-profit organisation made up of UK-based professional photographers who would like to offer their services free of charge to families of children with life-shortening conditions..

Turn 2 us

Turn 2 us

Turn2us helps people in financial need gain access to welfare benefits, charitable grants and other financial help – online, by phone and face to face through our partner organisations..

Merlin’s Magic Wand

Merlin’s Magic Wand

Merlin’s Magic Wand is a worldwide charity for children and we arrange magical days out at Merlin Entertainments attractions, such as LEGOLAND Resorts®, SEA LIFE Centres and Madame Tussauds..

NHS Organisations

Birmingham Children's Hospital

Birmingham Children's Hospital

Located in Birmingham City Centre on Steelhouse Lane, we provide the widest range of children’s health services for young patients from Birmingham, the West Midlands and beyond, with over 257,000 patient visits every year..

New Cross Hospital

The Royal Wolverhampton Hospitals NHS Trust was established in 1994 and is a major acute Trust providing a comprehensive range of services for the people of Wolverhampton, the wider Black Country, South Staffordshire, North Worcestershire and Shropshire.

West Midlands Adult CF Centre

West Midlands Adult CF Centre

Provides information about the West Midlands Adult CF Centre based at Birmingham Heartlands Hospital.

Educational resources

Getting Nosey about CF with Oli and Nush

Getting Nosey about CF with Oli and Nush

'Getting Nosey about CF with Oli and Nush' is a cartoon aimed at children with cystic fibrosis aged four to eight, to help answer some of the questions they may have about cystic fibrosis. The cartoon can also be used as an educational resource in schools and hospitals.

Financial support

Warm House discount scheme

Warm House discount scheme

Government website which provide information about grants and utility bill discount.

Water Sure Scheme

Water Sure Scheme

The WaterSure scheme is available for certain customers with a water meter. It allows them to have their bills capped. This is to make sure that these customers don’t cut back on how much water they use because they are worried about how they will pay their bill.