Teenage & Transition
Transitioning to a new team can be an unsettling experience. Watch the video below to learn more about what it involves and to see the experiences of others.
What is Transition
Transition is a purposeful, planned process for young people with long term conditions to move from child-centred to adult orientated health care.
The Adult Cystic Fibrosis team will be able to offer you a more appropriate service for your age, meeting all your medical, psychosocial and educational/vocational needs.
The transition process will start between the age of 14 – 17 and will be tailored to meet your individual needs. The options for your adult CF care will be discussed with you. We would start talking to you about the process well in advance, during clinic and home visits.
A joint clinic appointment will usually be arranged for you between your paediatric team and your new adult CF team. This is an opportunity for you to meet the adult CF physician and other members of their multi-disciplinary team. Your CF consultant and CF nurse will be there to support you and share important information about your CF and treatment.
After meeting the adult team you will be offered an informal visit to the adult centre. This is an excellent opportunity to meet more of the adult team and orientate you to the inpatient ward, facilities and clinic. We may also offer a joint home visit to enable you to meet one of the nurses from the adult CF team.
The next joint clinic appointment will take place in the Adult CF clinic. Your CF consultant and CF nurse will be present and you will meet the same adult team again. The adult team are happy for your parent/s to attend clinic appointments with you until you have settled in and feel comfortable and confident in decision making.
After this appointment your care is now handed over the adult team and you begin the next phase of your adult life.
Preparing for your Transition
- Be proactive with regards to your condition and take responsibilty for it
- Expectations will alter as you get older so try doing your treatment without being reminded
- Know your medications well
- Talk to your CF consultant about what CF means to you
Useful Documents and Links
We are the UK's only national charity dealing with all aspects of Cystic Fibrosis. We fund research to improve Cystic Fibrosis care and treatment, and aim to ensure appropriate clinical care and support for people with Cystic Fibrosis.
This service is provided by the Respiratory Medicine department run by the Heart Of England NHS Foundation Trust.
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