We would love to hear your stories so please share a story →
We were very worried and unsure of the future, that was until we met the Cystic Fibrosis team at The Birmingham Children's Hospital. They were fantastic at explaining all about Jessica's condition and helped to put our minds at ease.
We would take it away from him if we could but we can't, we have to deal with the situation and take everyday as it comes. Yes we still have hard day's, but it's to be expected - nothing is how we planned! The routine we have has become normality
We are lucky enough to be under the shared care system between Birmingham Children’s Hospital and Sandwell and West Birmingham Hospital Trust. We get twice the number of specialists looking out for George. There is always someone available to speak to if we have a concern about anything.
He’s strong, he’s clever, he’s very disciplined and competitive and I think CF has made him like this, he’s definitely a fighter and I hope that fighting spirit stays with him for the rest of his very long life
One thing that is so difficult to imagine after diagnosis is exactly what life will be like for your child.