Access your family support worker
by Stacey Taylor 1st May 2015
Role of the Family Support Worker (FSW)
The role of the Family Support Worker is to aim to provide support and assistance to children and young people affected by Cystic Fibrosis along with their parents and carers.
The FSW works as part of a team made up of several disciplines including Consultants, Nurses, Psychologists, Physiotherapists, Dietitians, and Pharmacists. This enables valuable and relevant information to be shared in a bid to ultimately provide a service that meets individual needs.
What support is available?
Caring for a child with possible complex needs may bring with it any number of anxieties and concerns and there may be times when life becomes more stressful and difficult to manage. It is hoped that families will make use of the service to help alleviate some of the issues that they may be facing
A range of support is listed below
- Emotional and Practical support.
This might be at diagnosis or at times of change, including hospital admissions, ill health, change of school or transition to the Adult team, for example.
- A listening ear.
The FSW can provide a sensitive and confidential service, offering a ‘safe place’ to talk through any issues which may be confusing, painful or uncomfortable. They can assist in problem solving and devising coping strategies.
- Liaison with other agencies
To include housing departments, schools and colleges, GPs, health Visitors , Voluntary agencies etc.
- Finances and Welfare Rights
This could include Appeals with PIPs and DLA, assisting with particularly complex applications for benefits, letters of support and completing Charitable applications for family breaks, days out, essential household goods etc
- Support through Transition
Between the age of 16 and 17 most young people will transfer to the Adult service for their continued treatment. For some this is an accepted natural progression, however, for others it can be quite an anxious time. Families will have known staff here for many years and relationships will have been forged.
The FSW will visit and discuss the changes ahead and complete a ‘Transition Assessment’ this will allow families and young people the time to talk about how they are feeling with regards the move and will provide valuable information to the Adult team.
How to contact the Family Support Worker
The FSW attends all clinics from baby Clinic to transition.
It is a full time post and appointments can be made in Outpatients, on the Ward
The FSW shares an office with the Cystic Fibrosis Nurses.
Tel: 0121 333 9255
Mob: 07788 300 854