CORONAVIRUS COVID-19

By: Steve Byrne

Today, Tomorrow and the future in CF Treatment

By: Stephen Byrne

A Meeting for Parents and Carers of children and young people who have Cystic Fibrosis (CF)

Exciting new development for the Respiratory and Cystic Fibrosis Inpatient Environment - New Ward 15

By: Joanne Osmond

We currently admit children and young people to one of two Ward areas; Ward 2 for the under 5s and Ward 7 for the over 5s. From Monday 10th June 2019, all children and young people with respiratory and CF conditions requiring admission will be admitted to the newly refurbished Ward 15 environment, located above the Emergency Department (ED). The new Ward is a much larger, brighter space than we occupied previously with more beds. In particular, we will be able to provide our patients with access to en-suite facilities which has historically proven difficult for us. The nursing staff, and indeed all other staff, will remain the same and, therefore, importantly familiar to our families. We are aiming for a seamless transition to the new building, but please bear with us if there are any teething problems. As always, our prime aim is to minimise any cross infection risks and enable your child to be seen in an efficient and comprehensive manner during an inpatient stay. We very much hope that you will view this change in environment as a hugely positive initiative, one designed to improve the patient/family experience and to enable as efficient working as possible whilst delivering an excellent standard of care. If you have any feedback once you have experienced these new facilities, please do let us know by contacting Jo Osmond, CF Service and Network Manager.

Cystic Fibrosis Trust, CEO David Ramsden and Dr Keith Brownlee visit Birmingham Children's Hospital, CF Service and Waterfall House

By: Joanne Osmond

Following the opening of the Rare Diseases Centre, Waterfall House in the summer of 2018, and the opportunity this presented for Cystic Fibrosis outpatient clinics to be held in this fabulous new purpose-built facility, we were able to host a visit from the Cystic Fibrosis Trust's CEO, David Ramsden and their Director of Policy, Programmes and Quality Improvement, Dr Keith Brownlee on Wednesday 10th April 2019.

'CF Today and Looking Ahead' - Saturday 30th March 2019 from 9.30-1.00 pm

By: Joanne Osmond

An interactive session for People with CF, Parents and Carers with talks by members of the CF Community, doctors and other CF health professionals

Opening of new Rare Diseases Unit at Birmingham Women's and Children's Hospital - Waterfall House

By: Joanne Osmond

We're very proud to be home to the UK’s first rare diseases centre for children. The centre, located in Waterfall House - our £37.5million clinical building, is due to open in 2018. The rare disease centre has been generously funded by donations to the Birmingham Children’s Hospital Charity’s Star Appeal, which raised £3.65million for the cause. We treat approximately 9,000 children and young people with more than 500 different rare diseases from across the UK and have 11 highly-specialised services. The centre means that we will be able to offer our rare disease children and young people highly coordinated multidisciplinary and multi-specialty rare disease clinics together with peer support and consistent access to research, information and treatment. We are proud to be redefining the best care from a 'one-size-fits-all' to a patient-centred approach in which we help children and families with rare diseases lead the best quality of life possible.