Network information
Latest News
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06
SEP 2018
Opening of new Rare Diseases Unit at Birmingham Women's and Children's Hospital - Waterfall House
We're very proud to be home to the UK’s first rare diseases centre for children. The centre, located in Waterfall House - our £37.5million clinical building, is due to open in 2018. The rare disease centre has been generously funded by donations to the Birmingham Children’s Hospital Charity’s Star Appeal, which raised £3.65million for the cause. We treat approximately 9,000 children and young people with more than 500 different rare diseases from across the UK and have 11 highly-specialised services. The centre means that we will be able to offer our rare disease children and young people highly coordinated multidisciplinary and multi-specialty rare disease clinics together with peer support and consistent access to research, information and treatment. We are proud to be redefining the best care from a 'one-size-fits-all' to a patient-centred approach in which we help children and families with rare diseases lead the best quality of life possible.
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06
SEP 2018
A Workshop for Parents/Carers of Babies and Young Children on Monday 17th September 2018
An opportunity for parents/carers of babies and young children with cystic fibrosis to come together to share experiences, discuss topical subjects, issues or situations and learn about any new developments in the management of CF.
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18
APR 2018
Gym Equipment for Children with Cystic Fibrosis in Worcester
Children with cystic fibrosis benefit from local donations
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28
APR 2016
The New Parents Information Evening 2016
Thank you to parents and carers who came to the evening on Monday 18th April.
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21
MAR 2016
Website launch
We are pleased to announce the launch of the new website for the network. We hope this is a valuable resource for everyone.
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23
OCT 2015
New Service Brings Care Closer To Home
A new service at Worcestershire Acute Hospitals NHS Trust has been set up to provide care and treatment for children and young people living with cystic fibrosis.
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