Network information
Latest News
28
JUL 2020
1st ever Young Persons Virtual Event
Children and Young People with Cystic Fibrosis have been shielding since the start of lockdown and we are approaching the end of July (31st) when families can start to venture out, of course taking the necessary precautions, e.g., social distancing and wearing of masks where appropriate. We understand that many individuals will be feeling anxious about the end to their lockdown period and resuming more usual activities, and hence the opportunity to discuss and interact with others at this first Young Persons Event.
READ MORE
09
JUL 2020
Worcester Cystic Fibrosis Centre Welcome New CF Nurse Specialist
Following the departure of Vikki Harrison for pastures new, and working alongside Nicky Wedgbury, the Worcester CF Team welcome Alex MacDonald as their newly appointed CF Nurse Specialist
READ MORE
07
JUL 2020
Shielding Update for Cystic Fibrosis Patients at Birmingham Women's and Childrens NHS Trust
Given the latest guidance from Government and Public Health England, along with more specific advice from the Cystic Fibrosis Medical Association (CFMA) and Royal College of Paediatrics and Child Health (RCPCH), we have provided a shielding update for our families.
READ MORE
04
JUN 2020
Virtual Parents Meeting on Thursday 11th June 2020
It is now several weeks since the country went into Lockdown due to the Coronavirus pandemic. We have all been challenged in many ways, and we thought it would be helpful to hold a virtual meeting for Parents and Carers of Children within the West Midlands Paediatric Cystic Fibrosis Network so that we can share some of our thoughts about how we all best manage in terms of providing and delivering care, both at home and within the hospital.
READ MORE