Get involvedGet involved

There are plenty of ways to get involved, whether you are a patient, family member or carer.  


We feature stories on some of our CF patients and we'd love to hear from you too.   Read some of your stories →


There are several simple ways that you can donate money to support our vital work in research, support and care.   To get started, access the links below:

Family representatives

A Family Representative is a person with first-hand experience of the using the CF service. The role is designed to strengthen the voice of children with CF and their families, to support the Board and the Network ensuring patients receive the best service possible.

The Family Representative provides valuable insight into the experiences of the children with CF and their families and are able to effectively represent their views.  Their role also helps to ensure that the patient’s best interests are always at the heart of every decision and that their voice is heard, in order to positively influence the future of the service.