4th June 2019
We currently admit children and young people to one of two Ward areas; Ward 2 for the under 5s and Ward 7 for the over 5s. From Monday 10th June 2019, all children and young people with respiratory and CF conditions requiring admission will be admitted to the newly refurbished Ward 15 environment... READ MORE →
15th April 2019
Following the opening of the Rare Diseases Centre, Waterfall House in the summer of 2018, and the opportunity this presented for Cystic Fibrosis outpatient clinics to be held in this fabulous new purpose-built facility, we were able to host a visit from the Cystic Fibrosis Trust's CEO, David Ramsden... READ MORE →
11th February 2019
An interactive session for People with CF, Parents and Carers with talks by members of the CF Community, doctors and other CF health professionals... READ MORE →
6th September 2018
We're very proud to be home to the UK’s first rare diseases centre for children. The centre, located in Waterfall House - our £37.5million clinical building, is due to open in 2018. The rare disease centre has been generously funded by donations to the Birmingham Children’s Hospital Charity’s... READ MORE →
6th September 2018
An opportunity for parents/carers of babies and young children with cystic fibrosis to come together to share experiences, discuss topical subjects, issues or situations and learn about any new developments in the management of CF.... READ MORE →
18th April 2018
Children with cystic fibrosis benefit from local donations... READ MORE →
18th May 2015
We are pleased to announce that the Birmingham Mail (Pride of Nursing awards) is proud to recognise the hard work and dedication of the Cystic Fibrosis Team for 2015. To read more about this achievement please follow the link below.... READ MORE →
One thing that is so difficult to imagine after diagnosis is exactly what life will be like for your child.
Cystic fibrosis (CF) is a life limiting inherited disease, affecting over 10,000 people in the UK.
You can't catch or develop cystic fibrosis, it's something you're born with and most cases in the UK are now diagnosed soon after birth.
If you or someone you know has been recently diagnosed with cystic fibrosis it can be overwhelming. CF is a complex disease and the types and severity of symptons can differ widely from person to person. Breakthrough treatments have added years to the lives of people with CF. There is no cure for CF however there have been tremendous advancements in research and care with many people with CF being able to realise their dreams of attending college, pursuing careers, having meaningful relationships and children of their own.
Cystic fibrosis is an inherited genetic disease caused by a faulty gene. These genes control the movement of salt and water in and out of your cells, resulting in the lungs and digestive system becoming clogged with mucus, making it hard to breathe and digest food.
Each of the thousands of genes in the body has 2 copies. For CF to occur, both copies of the CF gene (CFTR) need to be faulty. Each parent of a child with CF will have one faulty copy of the gene and one normal copy; having one normal copy is enough to stay healthy. Each parent passes on one copy of each of their CF genes
This means that there is a 1 in 4 chance of both faulty genes being passed on to their children.
Symptoms of cystic fibrosis can include a troublesome cough, chest infections, prolonged diarrhoea and poor weight gain. These symptoms are not unique to cystic fibrosis. Cystic fibrosis is a complex disease that affects many different organs.
There is currently no cure for cystic fibrosis but many treatments are available to manage it, including physiotherapy, exercise, medication and nutrition.
More than half of the cystic fibrosis population in the UK will live past 41, and improved care and treatments mean that a baby born today is expected to live even longer.
People with CF are at greater risk of getting lung infections because of the thicker and stickier mucus which builds up in their lungs allowing germs to thrive and multiply. Chest infections and a troublesome cough, caused mostly by bacteria are a serious and chronic problem for many people living with CF.
A combination of physiotherapy and medication can help control chest infections and prevent the buildup of mucus that damages the lungs.
To stay healthier and reduce the risk of cross infection people with CF should not meet or come into close contact with one another.
It is common for people with cystic fibrosis to experience some problems with lung function, although not everyone is affected.
People with CF have to pay more attention to what they eat and how they digest food. In most people with CF the digestive tract works a little differently. Cystic fibrosis affects the pancreas (see picture) because of the buildup of thick, sticky mucus that blocks the ducts, stopping digestive enzymes produced in the pancreas, from reaching the intestines to aid digestion. This can make it difficult for people with CF to grow normally and maintain a healthy weight
Supplements can help compensate for the lack of enzyme production by the pancreas, such as digestive enzymes that most people with cystic fibrosis take with each meal to help digest food
The South and Central West Midlands Cystic Fibrosis Network provide care for around 300 patients.
The Network comprises of 7 centres:
Designated Specialist Centre
Shared Care Centre’s
We provide outstanding care for children and young people with Cystic fibrosis. Achieved by highly skilled multidisciplinary professionals, working together to deliver both individualised and family centred care.
CF affects patients and families at different life stages. We have put together information & advice to help at every stage
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